Not a great deal to report. White blood cells are still low - 0.08 today. Haemoglobin the same as the other day (88). Potassium coming back up. C'mon bone marrow, get to work.
Dave had to go to work today so some more lovely friends looked after the girls so that I didn't have to worry about them and I could potter around home and rest as needed. It was a good day. I watched some terrible daytime t.v., folded some clothes and stayed cool inside the house. Boring but better that than spicing things up with a trip to hospital.
One thing that is not cancer related but has been a bit of a bother lately is that Elsie keeps waking up during the night and not settling easily back into her cot. This means that Dave and I are getting broken sleep and that Dave (mostly) gets up a couple of times a night. He's getting pretty tired. We have resorted at times to taking her into our bed where she either sleeps for a while or stuffs around for a while before we take her back to her bed and she goes back to sleep there. It's a bit weird really and it's probably not a good habit but we're not up for listening to a screaming baby in the middle of the night. Anyway, that's one of the things that adds to the mix here.
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Hey,
ReplyDeletesorry to hear your immune system is basically non existant. we're praying for you guys.
have you tried a night light for Elsie? i'm sure you've probably tried everything. the medicine 'Pain Stop' should knock her out for the night, an invaluable addition to any parents Medicine Box.
Lots of love
Oh, I used to LOVE night lights... my mum put a butterfly sticker on mine... daytime tv inside a cool house? Sounds like my dream day!!!
ReplyDeleteI wouldn't feel guilty about letting her sleep in her bed- every parent probably has a vice or something they do that they know they shouldn't...like Jo drugging her children...i've gotta get me some of that stuff so I sleep at night!!